Beta Program · Patients & Families

Joining the beta — what you're agreeing to, in plain language.

Before you join the AuVentures Health beta, here is what the tool is, what it isn’t, how your information is handled, and what you can expect. Read it once; you can come back to it anytime.

Version 0.1

Effective [04, June 2026]

Applies to the July 2026 beta

The short version

The full agreement is below. None of it should surprise you after reading this.

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AuVentures is early software. It will have rough edges, and parts of it will change.

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It is not a doctor and not medical advice. Your own clinicians stay in charge of your care.

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Your records and everything you add are yours. You can export all of it and delete your account whenever you want.

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We protect your information carefully — but no system anywhere is perfectly secure, and we won’t pretend otherwise.

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Joining is your choice. You can leave at any time, for any reason, without explaining yourself.

Who this agreement is for

This agreement is between you and AuVentures Health (“AuVentures,” “we,” “us”). It covers your participation in the AuVentures beta program. You can take part if you are 18 or older and located in the United States.

If you are managing health information on behalf of a family member — a child, a parent, or someone in your care — you may use AuVentures for them only if you have the legal authority to make decisions about their health information, and you agree to these terms on their behalf.

What AuVentures is — and what it isn't

AuVentures helps you gather, digitize, and organize your medical records over time, and turns dense clinical documents into plain-language summaries you can actually read. Some of that organizing is assisted by software, including AI.

It is a tool for understanding and keeping track of your health information. It is not any of the following:

In an emergency, AuVentures is the wrong tool. If you think you are having a medical emergency, call 911 or your local emergency number, or go to the nearest emergency department.

What to expect from a beta

A beta is unfinished software that real people use early so we can find out what works. That means you should expect things that aren’t true of a finished product:

Features may be incomplete, may behave unexpectedly, or may not work at all.
We may add, change, or remove parts of the tool while you're using it.
The service may be slow, unavailable, or paused for maintenance at times.
Summaries and organization produced with AI assistance can be incomplete or wrong (see Section 8).

Because of this, you should not rely on the beta as your only record of your health information, and you should not make health decisions based on it without checking with a clinician.

Your information belongs to you

The records you bring in and the information you add are yours. AuVentures holds and organizes that information on your behalf — we think of ourselves as a custodian, not an owner. Practically, that means:

You can export a complete copy of your information at any time, in a usable format.
You can delete your account and ask us to remove your information. We will do so, except where we are required to keep certain records by law (and we will tell you when that applies).
We do not sell your personal health information, and we never will.

How we use your information

We use your information to provide the service to you — to retrieve, store, organize, and summarize your records — and, with your permission, to request records from your providers on your behalf.

We may also use information about how the tool is used to improve it. Where we do this for purposes beyond your own account, we use information that has been de-identified or aggregated so it cannot reasonably be tied back to you, and you can opt out of having your information used this way without losing access to the beta.

We will not, without asking you first:

Privacy and security — honestly

We design AuVentures to keep your information separated, access-controlled, and encrypted in storage and in transit. We take this seriously, and the privacy architecture is described in more depth in Our Approach.

Here is the honest part. The federal health-privacy law most people have heard of — HIPAA — generally governs doctors, hospitals, and insurers. A tool like AuVentures, which receives your records at your direction, is usually not a “covered entity” under HIPAA, so HIPAA may not directly apply to the information once it is with us.

We don’t treat that as a loophole. Whether or not HIPAA technically applies, we commit to protecting your information to a comparable standard — and we’d rather tell you plainly how the law works than let you assume a protection you don’t have.

No system is perfectly secure. If a breach affects your information, we will notify you and the appropriate authorities promptly, and tell you what happened and what we’re doing about it.

Permission to request your records

To gather your records, AuVentures sometimes needs to ask your providers for them on your behalf. By joining, you authorize us to make those requests for the providers you identify, and to receive the records they send.

You can withdraw that permission at any time. Withdrawing it stops future requests; it does not undo records we have already received, though you can still delete those under Section 4.

AI assists — your clinicians decide

Some of what AuVentures does — summarizing documents, grouping records, flagging things to look at — is done with AI assistance. AI is useful, and it is also fallible: it can misread a document, miss something important, or state something with confidence that is simply wrong.

So the rule across AuVentures is that human judgment stays in charge. Treat anything the tool produces as a starting point to talk through with a clinician, not as an answer. When something matters, check it against the original records and with the people responsible for your care.

Feedback, and being heard

Because this is a beta, we may ask you what’s working and what isn’t — through short surveys, optional interviews, or a feedback button. Sharing feedback is always optional.

If you do share feedback, you give us permission to use it to improve AuVentures, without owing you anything for it. We will not attach your name to feedback we share internally without asking you.

AuVentures is designed to be neurodiversity-informed, and that extends to how we ask for your time. If a different format would make it easier to take part — more time, written instead of spoken, a quieter setting — tell us and we’ll accommodate it where we can.

Joining is voluntary; leaving is easy

Taking part is entirely your choice, and you can stop at any time, for any reason, without explaining yourself. To leave, you can delete your account in the tool or email us (Section 14).

When you leave, you can take a copy of your information first, and we will delete the rest as described in Section 4. Leaving the beta does not affect your care with any provider.

Cost

Participation in the beta is free. We are a not-for-profit, and the beta is not a paid service. We are not paying you to take part, and you are not paying us.

The legal limits

Because the beta is provided free and unfinished, it comes “as is,” without warranties of any kind, to the fullest extent the law allows. We do not promise the tool will be uninterrupted, error-free, or fit for any particular purpose.

To the fullest extent the law allows, AuVentures is not liable for indirect or consequential losses arising from your use of the beta. Nothing in this agreement limits any rights you have that cannot be limited by law.

Placeholder. The exact wording of the disclaimer, liability limit, and governing-law terms must be set by counsel before launch.

Changes

We may update this agreement or the beta itself as the tool develops. If we make a material change to this agreement, we will let you know and give you a chance to review it before it takes effect. If you don’t agree with a change, you can leave the beta.

Questions

If anything here is unclear, ask before you join — that’s the whole point of writing it plainly. You can reach us at beta@auventures.org.